The research, which was conducted by researchers in the United States and United Kingdom in collaboration with the WHO Department of Mental Health, published in The Lancet.
Margaret Swarbrick, Director of Practice Innovation & Wellness at Rutgers University Behavioral Health Care who had collaboration with the Scientific co-director of the Global Mental Health Program on the United States portion of the study, Kathleen M Pike, stated that including the personal experiences of people with disorders in diagnostic manuals will enhance their access to treatment & reduce stigma.
The researchers contacted people with 5 common disorders, bipolar disorder type 1, generalized anxiety disorder, schizophrenia, depressive episode, and personality disorder and about how their condition should be described in the forthcoming 11th revision of the International Classification of Diseases & Related Health Problems (ICD-11). ICD is the most commonly used classification system for mental disorders. This is the first-ever time people with diagnosed mental health disorders who aren’t health practitioners have been given the invitation to give their input on any published mental health diagnostic guidelines.
157 people were surveyed by the project who were diagnosed with these conditions in the UK, India and the United States. An initial draft of the ICD-11 was reviewed by the participants about the chapter on mental, behavioral & neuro developmental disorders and suggested changes to more accurately reflect their experiences or /and remove the objectionable language.
Many participants stated that the draft lacked the emotional & psychological experiences they regularly have. People with schizophrenia cited to fear, anger, memory difficulties, remoteness & difficulty communicating internal experiences. People with bipolar disorder further added anger, anxiety, nausea & increased creativity. People with general anxiety disorder added anger and nausea. People with depression added anxiety and pain. People with personality disorder added vulnerability to exploitation & distress.